Category: Update

Have you heard ?

May 3, 2017

I’ve become quite blasé about telling people now. Its not a job I enjoy as it can be upsetting for both the listener and the speaker, however it wasn’t always like that…

The first person I told was Mudders – I ended up sobbing outside a bar in Soho of all places, then Squirt and H as we were away on our annual London Golf trip. Next was my father (although he kind of already knew) and brother, then a few more close friends and then my mother (just because it takes longer to get a date to see Mum). I chickened out of telling my in-laws, I left that to Becky (sorry).

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March 2017 Update – 1 Year In

March 1, 2017

March 2016 marked the ‘Estimated’ start of my illness – the first time a professional (Chiropractor) noticed weakness in my left arm. Thankfully (touching a lot of wooden stuff) progression has been reasonably slow and in the words of one of my Consultants “you’re not a third of the way through this yet so you’re not in the 3 year bracket”.

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Diagnosis Death – What Next ?

October 10, 2016

I was diagnosed on October 4th although I had some idea what was coming as early as July 2016. While it didn’t come as a shock hearing the words directed at you are pretty numbing. He said it in such a calm, matter of fact way that it was difficult to take in. Unlike many nasty diseases there isn’t any ‘treatment’ as such. It runs its course at its own unique pace – all they can do is try and extend what life you have left. So what’s next ? This will of course be different for everyone but for me its easier to start with what I didn’t do.

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